This is about Alia Grace a four year old from Hookset NH that has developed MLD. We need to bring focus this growing disease and to help develop treatment for the stricken and future patients.
Alia has a wonderful family that supports her and each other during these times. We look to help financially to ease the burden of time off work, doctor trips to Boston, medical supplies, and all else associated with support for Alia.
This will be the 3rd Alia Grace MLD Awareness ride. Our first ride attracted over 250 bikes and all participated on a great ride.
We are looking for your support with this awareness fund raiser to help make this a success. Any support that you could offer would be greatly appreciated.
The cause is pure, a percent of the money raised this year will go directly to MLD all others go to Alia’s family to defer expenses and to give Alia all that she needs for as long as she needs.
We need help in getting the word out, help with food costs and other expenses, raffle donations, and all else associated with this event. With your help we can make this a great day for Alia Grace.